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Category Archives: GNU Health

Jérôme Lejeune Foundation adopts GNU Health

14 Saturday Jan 2023

Posted by Luis Falcon in GNU Health

≈ Comments Off on Jérôme Lejeune Foundation adopts GNU Health

Tags

bioinformatics, Down Syndrome, gnu, GNU Health, GNU solidario, GNUHealth, Open Science, Social Medicine, Trisomy 21

We start 2023 with exciting news for the medical and scientific community!

GNU Health has been adopted by he Jérôme Lejeune foundation, a leading organization in the research and management of trisomy 21 (Down Syndrome) and other intellectual disabilities of genetic origin.

Lejeune foundation has its headquarters in France, with offices in Argentina, the United States and Spain.

On December 2022, the faculty of engineering from the University of Entre Rios, represented by the dean Diego Campana and the head of the school of Public Health, Fernando Sassetti, formalized the agreement with the president of the Lejeune foundation in Argentina, Luz Morano.

The same month, I met in Madrid with the medical director and IT team of the Lejeune foundation Spain.

Luz Morano declared “[GNU Health] goes beyond the Foundation, providing the health professionals the specific features to manage a patient with trisomy 21. We are putting a project in the hands of humanity“

[GNU Health] goes beyond the Foundation, providing the health professionals the specific features to manage a patient with trisomy 21. We are putting a project in the hands of humanity

Luz Morano, President of Lejeune Foundation, Argentina

Morano also stated: “GNU Health will pave the road for the medical management, and let us focus on our two other missions: Research and the defense of patient rights“

The agreement is in the context of the GNU Health Alliance of Academic and Research Institutions that UNER has with GNU Solidario. In this sense, Fernando Sassetti explained “It provides tools for an integrative approach of those people with certain pathologies that due to the reduced number are not managed in the best way. This will benefit the organizations and health professionals, that today lack the means to do so in the best way and timely manner. It benefits the patients, in their right to have an integral health record.”

Research and Open Science

The adoption of GNUHealth by the Jérôme Lejeune Foundation opens new exciting avenues for the scientific community. In addition to the clinical management and medical history, GNU Health will enable scientists to dive into the fields of genomics, epigenetics and exposomics, gathering and processing information from multiple contexts and subjects, thanks to the distributed nature of the GNU Health Federation.

The GNU Health HMIS counts many packages and features, some of them of special interest for this project. In addition to the specific customizations for the foundation, the packages already present in GNUHealth, such as obstetrics, pediatrics, genomics, socioeconomics or lifestyle will provide a holistic approach to the person with trisomy 21 and other related conditions.

All of this will be done using exclusively Free/Libre software and open science.

People before Patients

Trisomy 21 poses challenges for the individual, their family, health professionals and the society. The scientific community needs to push the research to shed light on the etiology, physiopathology and associated clinical manifestations, such as heart defects, blood disorders or Alzheimer’s.

Most importantly, as part of the scientific community, we must put a stop to the discrimination and stigmatization. We must tear down the barriers and walls built on our societies that prevent the inclusion of individuals with trisomy 21.

As part of this effort, GNU Health provides the WHO International Classification on Functioning, disability and health (ICF). In other words, is not just the health condition or disorder we may have, but how the environmental factors and barriers influence the normal functioning and integration as individuals in the society. Many times, those physical, artificial barriers present in our daily lives are way more pernicious than the condition itself.

The strong focus of GNU Health in Social Medicine, and the way we perceive medicine as a social science will help improving the life of the person living with trisomy 21, and contribute to the much needed healing process in our societies. We need to work on the molecular basis of the health conditions, but little can be done if without empathetic, inclusive and supportive societies so people can live and enjoy life with dignity, no matter their health or socioeconomic status.

Projects like this represent the spirit of GNU Health and make me immensely proud to be part of this community.

Happy and healthy hacking!
Luis Falcon, MD
President, GNU Solidario

Links:

  • Convenio con la Fundación Jérôme Lejeune para implementación del sistema de software libre GNU Health – UNER: http://ingenieria.uner.edu.ar/boletin/index.php/noticias/956-convenio-con-la-fundacion-jerome-lejeune-para-implementacion-de-gnu-health
  • Fundación Lejeune Argentina : https://fundacionlejeune.org/
  • (French/English/Spanish) Fondation Jérôme Lejeune: https://www.fondationlejeune.org
  • GNU Health : https://www.gnuhealth.org
  • GNU Solidario: https://www.gnusolidario.org

Happy birthday, GNU Health!

12 Wednesday Oct 2022

Posted by Luis Falcon in gnu, GNU Health

≈ 2 Comments

Tags

free software, gnu, GNU Health, GNU solidario, GNUHealth

On a day like this, October 12th, 2008, I registered the “Medical” project at SourceForge. Fourteen years later, GNU Health has become the Libre digital health ecosystem used by governments, hospitals, laboratories, research institutions and health professionals around the globe.

I want to sincerely thank all the professionals who believed in the project since early on… from small clinics in the African rain forest, to many public primary care institutions in Argentina, to the largest hospital in India and Asia (AIIMS).

GNU Health, the Libre digital health ecosystem

Institutions such as the University of Entre Rios in Argentina, Leibniz University Hanover, the United Nations Institute for Global Health, the World Health organization and the European Bioinformatics Institute (EBI), Digital Public Goods Alliance, have helped the GNU Health project, by providing training, implementations or valuable resources in areas related to coding standards and medical genetics.

Many thanks to our sponsors, particularly Thymbra and openSUSE who have been supporting GNU Health since day one, sponsoring our annual congress (GNUHealthCon). In addition, openSUSE has donated raspberry pi devices for development and for implementation projects, as well as packaging GNU Health for their distribution. Thank you Fosshost, for all this years of hosting the GNU Health HMIS and the BigBlueButton for our conferences!

Thank you European Open Source Observatory Repository (OSOR) / Joinup and the Free Software Foundation Europe for your work in making GNU Health a reality in Europe, specially in the Public Health sector.

Immense gratitude to the GNU operating system, particularly, to Richard Stallman -father of the Free Software movement- who in 2011 declared GNU Health an official GNU project. Since that day, all the components of the GH ecosystem are hosted in Savannah.

GNU Package
GNU Health is an official GNU Package

The GNU Health ecosystem would not exist today without the Libre Software community. Excellent Libre projects like Tryton, LibreOffice, PostgreSQL, Flask, Python, GNUPG, Apache, and many others make GNU Health a reality. We’re so happy to count with our sister community Orthanc, a great Libre Medical Imaging project that makes the perfect GNU Health partner in hospital settings and diagnostic imaging.

Last but not least: Thank you to the core team and to the community around the world: Developers, testers, translators, artists, documentation team, podcasters and journalists … I can not name you all… but the success of GNU Health belongs to you.

On a day like this, 14 years ago, the revolution for freedom and equity in healthcare began. And this is just starting…. at GNU Solidario, we’ll keep on advancing Social Medicine, and fighting so health remains a non-negotiable human right, no matter where you live. After all, GNU Health is a Social project with a little bit of technology behind.

Happy and Healthy hacking!

Luis Falcón

(Original document: https://my.gnusolidario.org/2022/10/12/happy-birthday-gnu-health/)

Cirugía Solidaria chooses GNU Health

09 Tuesday Aug 2022

Posted by Luis Falcon in GNU Health, GNU solidario, HMIS, LIMS, Public Health

≈ Comments Off on Cirugía Solidaria chooses GNU Health

Tags

ehealth, GNU Health, GNUHealth, Public Health

The GNU Health community keeps growing, and that makes us very proud! This time, the Spanish non-profit organization Cirugía Solidaria has chosen GNU Health as their Hospital and Lab Management system.

Cirugía Solidaria was born in 2000 by a team of surgeons, anesthetists and nurses from “Virgen de la Arrixaca Hospital”, in Murcia, Spain, with the goal to provide medical assistance and to perform surgeries to underprivileged population and those in risk of social exclusion. Currently, Cirugía Solidaria counts with a multi-disciplinary team of health professionals around Spain that just made its 20th anniversary of cooperation.

GNUHealth Hospital Management client for Cirugía Solidaria

Around a month ago I received a message from Dr. Cerezuela, expressing their willingness to be part of the GNU Health community. Their main missions currently are focused, but not limited, to the African continent.

Source: Cirugía Solidaria

After several conferences and meetings, this August 1st 2022, Cirugía Solidaria and GNU Solidario signed an agreement to cooperate in the implementation, training and maintenance of the GNU Health Hospital Management and Lab Information System in those countries and health institutions where Cirugía Solidaria will be present.

Source: Cirugía Solidaria

This is very exciting. We have many projects in different countries from Africa, and working with Cirugía Solidaria will help to generate more local capacity, to cover the needs of those health professionals and their population.

This is not just about surgeries or health informatics. GNU Health will allow Cirugía Solidaria to create sustainable projects. They will have unified clinical and surgical histories, telemedicine; assess the nutritional and educational status of the population, and many other socioeconomic determinants of health and disease.

I want to give our warmest welcome to the team of Cirurgía Solidaria, and we are very much looking forward to cooperating with this great organization, for the betterment our our societies, and for those that need it most.

About GNU Health

The GNU Health project provides the tools for individuals, health professionals, institutions and governments to proactively assess and improve the underlying determinants of health, from the socioeconomic agents to the molecular basis of disease. From primary health care to precision medicine.

GNU Health is a Libre, community driven project from GNU Solidario, a non-profit humanitarian organization focused on Social Medicine. Our project has been adopted by public and private health institutions and laboratories, multilateral organizations and national public health systems around the world.

The GNU Health project provides the tools for individuals, health professionals, institutions and governments to proactively assess and improve the underlying determinants of health, from the socioeconomic agents to the molecular basis of disease. From primary health care to precision medicine.

The following are the main components that make up the GNU Health ecosystem:

  • Social Medicine and Public HealthHospital Management (HMIS)
  • Laboratory Management (Occhiolino)
  • Personal Health Record (MyGNUHealth)
  • Bioinformatics and Medical Genetics
  • Thalamus and Federated health networks
  • GNU Health embedded on Single Board devices

GNU Health is a GNU (www.gnu.org) official package, awarded with the Free Software Foundation award of Social benefit, among others. GNU Health has been adopted by many hospitals, governments and multilateral organizations around the globe.

See also:

GNU Health : https://www.gnuhealth.org

GNU Solidario : https://www.gnusolidario.org

Digital Public Good Alliance: https://digitalpublicgoods.net/

Original post : https://my.gnusolidario.org/2022/08/09/cirugia-solidaria-chooses-gnu-health/

GNU Health declared Digital Public Good

04 Monday Apr 2022

Posted by Luis Falcon in GNU Health, HMIS, MyGNUHealth

≈ Comments Off on GNU Health declared Digital Public Good

Tags

DPGA, freesoftware, gnu, GNU Health, GNUHealth, OpenScience, Public Health, UNDP, UNICEF

We are very proud to announce that the GNU Health project has been declared a Digital Public Good by the Digital Public Goods Alliance (DPGA). GNU Solidario received the announcement this Sunday, April 3rd 2022.

The Digital Public Goods Alliance is a multi-stakeholder initiative endorsed by the United Nations Secretary-General, working to accelerate the attainment of the Sustainable Development Goals in low-and middle-income countries by facilitating the discovery, development, use of, and investment in digital public goods.

Current Digital Public Good Alliance board members (2022) . German Federal Ministry for Economic Cooperation and Development (BMZ), the Government of Sierra Leone, the Norwegian Agency for Development Cooperation (Norad), iSPIRT, United Nations Development Program (UNDP) , and the United Nations Children's Fund (UNICEF).
Digital Public Good Alliance board members (2022)

Current board members of the DPGA include the German Federal Ministry for Economic Cooperation and Development (BMZ), the Government of Sierra Leone, the Norwegian Agency for Development Cooperation (Norad), iSPIRT, United Nations Development Program (UNDP) , and the United Nations Children’s Fund (UNICEF).

The goal of the DPGA and its registry is to promote digital public goods in order to create a more equitable world. Being recognized as a DPG increases the visibility, support for, and prominence of open projects that have the potential to tackle global challenges.

GNU Health is now at the Digital Public Goods registry

After its nomination to become a Digital Public Good project, GNU Health had to pass the requirements of the DPGA standards. As the DPGA states :

The Digital Public Goods Standard is a set of specifications and guidelines designed to maximise consensus about whether a digital solution conforms to the definition of a digital public good: open-source software, open data, open AI models, open standards, and open content that adhere to privacy and other applicable best practices, do no harm by design and are of high relevance for attainment of the United Nations 2030 Sustainable Development Goals (SDGs). This definition stems from the UN Secretary-General’s Roadmap for Digital Cooperation.

Digital Public Good Standards

At GNU Solidario and GNU Health we are humbled and very happy with this recognition, and accept it with profound commitment, responsibility and determination. It makes us work even harder to keep on fighting for the advancement of Social Medicine, and to give voice to the voiceless around the world.

About GNU Health

GNU Health is a Libre, community driven project from GNU Solidario, a non-profit humanitarian organization focused on Social Medicine. Our project has been adopted by public and private health institutions and laboratories, multilateral organizations and national public health systems around the world.

The GNU Health project provides the tools for individuals, health professionals, institutions and governments to proactively assess and improve the underlying determinants of health, from the socioeconomic agents to the molecular basis of disease. From primary health care to precision medicine.

The following are the main components that make up the GNU Health ecosystem:

  • Social Medicine and Public Health
  • Hospital Management (HMIS)
  • Laboratory Management (Occhiolino)
  • Personal Health Record (MyGNUHealth)
  • Bioinformatics and Medical Genetics
  • Thalamus and Federated health networks
  • GNU Health embedded on Single Board devices

GNU Health is a Free/Libre, community-driven project from GNU Solidario, that counts with a large and friendly international community. GNU Solidario celebrates GNU Health Con and the International Workshop on e-Health in Emerging Economies (IWEEE) every year, that gathers the GNU Health and social medicine advocates from around the world.

We're thrilled to announce that #GNUHealth has been declared a #DigitalPublicGood by the @DPGAlliance #Socialmedicine #eHealth #openscience #bioinformatics #PublicHealth ❤️🤗👇https://t.co/fqRHkaxD6C pic.twitter.com/xWC5XJjgZd

— GNU Health (@gnuhealth) April 4, 2022

GNU Health is a GNU (www.gnu.org) official package, awarded with the Free Software Foundantion award of Social benefit, among others. GNU Health has been adopted by many hospitals, governments and multilateral organizations around the globe.

See also:

GNU Solidario : https://www.gnusolidario.org

Digital Public Good Alliance: https://digitalpublicgoods.net/

Source : https://my.gnusolidario.org/2022/04/04/gnu-health-declared-digital-public-good/

Leibniz University Hannover joins the GNU Health Alliance of Academic and Research Institutions

03 Thursday Feb 2022

Posted by Luis Falcon in gnu, GNU Health, GNU solidario

≈ Comments Off on Leibniz University Hannover joins the GNU Health Alliance of Academic and Research Institutions

Tags

bioinformatics, ehealth, gnu, GNU Health, GNU Health Alliance, GNU solidario, Open Science

GNU Solidario and Leibniz Universität Hannover (LUH) are now partners in GNU Health, the Libre digital health ecosystem.

This agreement makes the German university a member of the GNU Health Alliance of academic and research institutions, to work on the research and development of GNU Health, the award-winning Libre digital health ecosystem.

The partnership was signed on February 2nd, 2022, by Prof. Dr.-Ing. Gabriele von Voigt, head of the Computational Health Informatics department at Leibniz Universität Hannover and Dr. Luis Falcón, president of GNU Solidario.

University of Hanover main building. Source: LUH

We are excited and looking forward to cooperate and research in areas such as privacy, distributed health networks, bioinformatics, hospital management or Personal Health Records. Leibniz Universität Hannover has been using the GNU Health Hospital Management System component for quite sometime now internally, in their health informatics department. This agreement will boost even more the adoption of the libre health ecosystem.

Some of the components from the GNU Health digital health ecosystem

Leibniz Universität Hannover is a reference for the adoption of GNU Health in European universities, serving as a model of open science and free/libre software in public academic institutions. Moreover, being part of the GNU Health Alliance of Academic and Research Institutions opens up horizons to collaborate with other universities around the world.

We are positive that this agreement will help promoting the adoption of GNU Health and Libre Software within the healthcare system and biomedical research in Europe.

The logo of Leibniz University is a visual Leibniz quote. It shows the binary number system as first outlined by Gottfried Wilhelm Leibniz in his New Year’s letter of January 1697 to Duke Rudolf August of Wolfenbüttel.

About Leibniz Universität Hannover:

The Leibniz University Hannover, long form in German Gottfried Wilhelm Leibniz Universität Hannover, is a public research university located in Hanover, Germany. Founded on 2 May 1831, it is one of the largest and oldest science and technology universities in Germany. It has nine faculties which offer 190 full and part degree programs in 38 fields of study.It was named University of Hannover in 1978. In 2006, it was named after Gottfried Wilhelm Leibniz, the 18th century mathematician and philosopher. In 2018, Leibniz University Hannover was adopted as the official English name.

Leibniz University Hannover is a member of TU9, an association of the nine leading Institutes of Technology in Germany. It is also a member of the Conference of European Schools for Advanced Engineering Education and Research (CESAER), a non-profit association of leading engineering universities in Europe. The university sponsors the German National Library of Science and Technology (TIB), the largest science and technology library in the world

Source: https://en.wikipedia.org/wiki/University_of_Hanover

About the GNU Health Alliance

The GNU Health Alliance of Academic and Research Institutions is a GNU Solidario program comprising a global network of academic and research institutions around the world with the mission of provide a sustainable solutions to the current social and biomedical challenges, using GNU Health and Free Software components.

News source: GNU Solidario https://my.gnusolidario.org/2022/02/03/leibniz-university-hannover-joins-the-gnu-health-alliance-of-academic-and-research-institutions/

GNU Health emergency response in Haiti

15 Sunday Aug 2021

Posted by Luis Falcon in gnu, GNU Health, GNU solidario, Public Health

≈ Comments Off on GNU Health emergency response in Haiti

Tags

earthquake, gnu, GNU Health, GNU solidario, Haiti, Public Health, Social Medicine

Yesterday, yet another devastating earthquake hit the southern area of Haiti.

Immediately knowing about the earthquake, we contacted our representative in Haiti, Pierre Michel Augustin, and started an emergency humanitarian response in coordination with our team in the country .

Haiti suffers from recurrent natural disasters (hurricanes, earthquakes). In the last years, Haiti has also been a victim of structural poverty and civil unrest. Haitians are strong, resilient, noble people. Haiti is the land of the free and the brave (see my post “My trip to Haiti, the land of the Free and the Brave” ), yet it seems like the world has forgotten about Haiti.

GNU Solidario emergency response campaign in Haiti: https://www.gnusolidario.org/haiti.html

Archive picture (credit: UN Photo/Marco Dormino).

We need emergency response now, but we also need to work on Social Medicine, and tackle the socioeconomic determinants that are the root cause of the structural poverty in Haiti. Only then, our Haitians brothers and sisters will be able to recover the dignity that they deserve, and grow in prosperity. We need to create the conditions, working the local community in the country to strengthen the public health and education system. GNU Health is part of this program.

Our local representative, engineer Pierre Michel Augustin, has been working in the localization of GNU Health, and by the end of 2021, we will have the GNU Health node fully operational in Limbé. The Haiti GNU Health office will provide training and support to the local and regional health professionals and institutions.

The GNU Health project focuses on helping health professionals delivering Social Medicine and health informatics.

Natural disasters have a profound impact in the short, medium and long period in any nation. The situation gets much worse when they hit impoverished nations. So, in the short term, we will put all the effort to tackle this emergency and save lives. For the medium and long term, we will continue the GNU Health node in Haiti and building the GNU Health Federation in the country, in cooperation with the local team, academic and health institutions.

Creating local capacity is key to make the project sustainable. Resources will be dedicated to build the infrastructure (hardware, network..), but the main focus and effort will be on building local capacity, and training the local team to make them independent and build a sustainable and ethical model.

Visit https://www.gnusolidario.org/haiti.html to support our mission in Haiti

In the end, technology is just a medium, and GNU Health is a social project that uses really cool Free/Libre technology and open science, for the betterment of our societies.

Please consider helping GNU Solidario humanitarian campaign in Haiti, by visiting the following link:

https://www.gnusolidario.org/haiti.html

About GNU Solidario:

GNU Solidario is a non-profit humanitarian organization focused on Social Medicine. We have missions around the globe, and our projects has been adopted by health institutions, multilateral organizations and national public health systems around the world.

GNU Solidario is the organization behind GNU Health, the award winning Free / Libre digital health ecosystem, that provides a Hospital Management System, a Lab Information System, a Personal Health Record and a distributed, Federated health network.

GNU Health is a GNU official project ( see www.gnu.org), licensed under the GNU General Public License, GPL v3+

Back to the Future

12 Monday Jul 2021

Posted by Luis Falcon in GNU Health, Libre Software, MyGNUHealth

≈ Comments Off on Back to the Future

Tags

dwm, GNU Health, mHealth, MyGNUHealth, PinePhone, sxmo

Leonardo da Vinci said “simplicity is the ultimate sophistication“, but it seems like the “modern” computing world never heard that quote, or ignore it. Today, a single application takes hundreds of megabytes, both of disk and RAM space. Slow, buggy, inefficient systems at every level.

Probably the best example on this cluttering mess comes from the mobile computing. Most phones are bloated with useless software that not only hinders the navigation experience, but pose a threat to your privacy. Yes, all this software is proprietary. Worst of it, you can not even uninstall it.

Fortunately, there is hope. Let me introduce SXMO, the Simple X on Mobile project. As the authors describe it, SXMO is a minimalist environment for Linux smartphones, such as the PinePhone. SXMO embraces simplicity, and simplicity is both elegant and efficient.

MyGNUHealth running on PinePhone and SXMO
Full screen mode of MyGNUHealth on SXMO

SXMO uses a tiling window manager called dwm (Dynamic Window Manager), which allocates the different applications in the most efficient way. The dwm project is available as a single binary file, which source is intended not to exceed 2000 lines of code. That is amazing.

Simplicity is robust, and that again applies to SXMO. All the necessary components expected on a mobile phone (making and receiving calls, browsing the Internet, SMS messaging,..) just work. Moreover, SMXO comes with a scripting system that allow us to write solutions to our needs. For instance, the screenshots you see were taken with a script of 3 lines of code. Just place the little program under your “userscripts” directory, and voilà!, you’re ready to make screenshots from your PinePhone!

Browsing the Internet and the GNU Health homepage

Menu driven navigation in SXMO dwm in the PinePhone

In the end, most of current desktop environments today are huge, bloated and buggy. The discovery of SXMO has been an eyeopener. The perfect companion for my PinePhone.

I’m using SXMO on my PinePhone as a daily driver, and I just love it. Thanks to simple distributions such as Archlinux, Parabola or PostmarketOS, and simple Desktop / window managers as DWM, a am finally enjoying Libre mobile computing.

I feel projects like this take us back to the roots, to the beautiful world of simplicity, yet delivering the latest technology and showing us the path o the future.

References:

SXMO: https://www.sxmo.org

Pine64: https://www.pine64.org/

GNU Health : https://www.gnuhealth.org

PostmarketOS: https://postmarketos.org/

Archlinux: https://www.archlinux.org

Parabola: https://www.parabola.nu/

Featured Image: Leonardo da Vinci, drawing of a flying machine . Public domain, via Wikimedia Commons

Welcome to MyGNUHealth, the Libre Personal Health Record

24 Thursday Jun 2021

Posted by Luis Falcon in GNU Health, KDE, MyGNUHealth

≈ Comments Off on Welcome to MyGNUHealth, the Libre Personal Health Record

Tags

gnu, GNU Health, KDE, mHealth, MyGNUHealth, PHR

MyGNUHealth 1.0 us out! The GNU Health Libre Personal Health Record is now ready for prime time!

This is great news. Great news because citizens around the world have now access to a Free/Libre application, focused on privacy, that puts them in control of their health.

Health is personal, so is the health data. It’s been years since I got the idea of expanding the GNU Health ecosystem, not only to the health professionals and institutions, but making it personal, accessible to individuals. Now is a reality!

Throughout these years, the mobile health (mHealth) has been governed by private companies that benefit from your health data. Private companies, private insurances, proprietary operating systems, proprietary health applications. Big business, no privacy.

MyGNUHealth running on KDE Plasma desktop and Arch Linux

GNU and Libre Software

The GNU Health ecosystem exists because of Free software. Thanks to communities such as GNU, we can have fully operational operating systems, desktop environments, databases and programming languages that allow us to use and write free software. GNU Health is one example.

The Libre Software movement fights for the advancement of our societies, by providing universality in computing. In the case of GNU Health, that freedom and equity in computing is applied into the healthcare and social medicine domains. Health is a non-negotiable human right, so it must be health informatics.

What is MyGNUHealth?

MyGNUHealth (MyGH)is a Health Personal Record application focused in privacy, that can be used in desktops and mobile devices.

MyGH embraces the main health domains (bio-psycho-social). All the components in the GNU Health ecosystem combine social medicine and primary care with the latest on bioinformatics and precision medicine. The complex interactions between these health domains play a key role in the state of health and disease of an individual, family and society.

MyGH has the functionality of a health and activity tracker, and that of a health diary / record. It records and tracks the main anthropometric and physiological measures, such as weight, blood pressure, blood sugar level or oxygen saturation. It keeps track of your lifestyle, nutrition, physical activity, and sleep, with numerous charts to visualize the trends.

MyGNUHealth is also a diary, that records all relevant information from the medical and social domain and their context. In the medical domain, you can record your encounters, immunizations, hospitalizations, lab tests,genetic and family history, among others. In the genetic context, MyGH provides a dataset of over 30000 natural variants / SNP from UniProt that are relevant in human. Entering the RefSNP will automatically provide the information about that particular variant and it clinical significance.

The Social domain, contains the key social determinants of health (Social Gradient, Early life development, Stress, Social exclusion, Working conditions, Education, Physical environment, Unemployment, Social Support, Addiction, Food, Transportation, Health services, Family functionality, Family violence, Bullying, War) , most of them from the World Health Organization social determinants of health.

A very important feature of MyGH is that it is GNU Health Federation. That is, if you want to share any of this data with your health professional in real-time, and they will be able to study it.

Lifestyle and activity tracker
Social domain and its contexts, along the book of life
Mood and energy assessment
Medical genetics showing the relevant information on a particular natural variant / SNP

The PinePhone and the revolution in mobile computing

Of course, in a world of mobile phones and mobile computing, we need free/libre mobile applications. The problem I was facing until recently, that prevented me from writing MyGNUHealth, was the fact that there was no libre mobile environment. The mobile computing market has been dominated by Google and Apple, which both deliver proprietary operating systems, Android and iOS respectively.

The irruption of the Pine64 community was the eye-opener and a game changer. A thriving community of talented people, determined to provide freedom in mobile computing. The Pine64 provides, among others, a smartphone (PinePhone), and a smartwatch (PineTime), and I have adopted both.

Starting up MyGNUHealth application in the PinePhone
KDE Plasma mobile applications on the PinePhone

I wrote an article some weeks ago (“Liberating our mobile computing”), where I mentioned why I have changed the Android phone to the PinePhone, and my watch to the PineTime.

Does the PinePhone have the best camera? Can we compare the PinePhone with Apple or Google products? It’s hard to compare a multi-billion dollar corporation with a fresh, community-oriented project. The business model, the technology components and the ethics behind are very different.

So, why making the move? I made the change because we, as a society, need to embrace a technology that is universal and that respects our freedom and privacy. A technology that focuses on the individual and not in the corporation. That moves takes determination and commitment. There is a small price to pay, but freedom and privacy are priceless.

Taking MyGNUHealth and the PinePhone to the outdoors.

As a physician, I need to provide my patients the resources that use state-of-the-art technology, and, at the same time, guarantee the privacy of their sensitive medical information. Libre software and open standards are key in healthcare. When my patients choose free/libre software, they have full control. They also have the possibility to share it with me or with other health professionals, in real-time and with the highest levels of privacy.

We can only manage sensitive health data with technology that respects our privacy. In other words, we can not put our personal information in the hands of corporate interests. Choosing Libre Software and Hardware means much more than just technology. Libre Software means embracing solidarity and cooperation. It means sharing knowledge, code and time with others. It means embracing open science for the advancement of our societies, specially for those that need it most.

MyGNUHealth will be included by default in many operating systems and distributions, so you don’t have to worry about the technical details. Just use your health companion! If your operating system does not have MyGH in their repositories, please ask them to include it.

Governments, institutions, and health professional need affordable technology that respects their citizens freedom. We need you to be part of this eHealth revolution.

Happy and healthy hacking!

About GNUHealth:

MyGNUHealth is part of the GNU Health, the Libre digital health ecosystem. GNU Health is from GNU Solidario, a humanitarian, non-for-profit organization focused on the advancement of Social Medicine. GNU Solidario develops health applications and uses exclusively Free/Libre software. GNU Health is an official GNU project.

Homepage : https://www.gnuhealth.org

Documentation portal : https://www.gnuhealth.org/docs

IFMSA Bangladesh joins the GNU Health Alliance

07 Monday Jun 2021

Posted by Luis Falcon in GNU Health, GNU solidario, Libre Software, MyGNUHealth, Public Health

≈ Comments Off on IFMSA Bangladesh joins the GNU Health Alliance

Tags

free software, GNU solidario, Public Health

The non-profit organization with 3500+ medical students and 65 universities across the country is now part of the GNU Health Alliance of Academic and Research Institutions
The non-profit organization with 3500+ medical students and 65 universities across the country is now part of the GNU Health Alliance of Academic and Research Institutions

It’s a great day for Bangladesh. It’s a great day for public health! Today, GNU Solidario and the International Federation of Medical Students Association, IFMSA Bangladesh, have signed an initial 5-year partnership on the grounds of the GNU Health Alliance of Academic and Research Institutions.

IFMSA Bangladesh is a non-for-profit, non-political organization that comprises 3500+ medical students from over 65 schools of Medicine across Bangladesh. They are a solid organization, very well organized, with different standing committees and support divisions.

IFMSA vision and mission fits very well with those of GNU Solidario advancement of Social Medicine. IFMSA has projects on Public Health (reproductive health; personal hygiene; cardiovascular disease and cancer prevention, … ), Human rights and peace (campaigns to end violence against women; protection of the underprivileged elders and children.. ). I am positive the GNU Health ecosystem will help them reach their goals in each of their projects!

The GNU Health Alliance of Academic and Research Institutions is extremely happy to have IFMSA Bangladesh as a member. IFMSA Bangladesh joins now a group of outstanding researchers and institutions that have made phenomenal advancements in health informatics and contributions to public health. Some examples:

  • The National University of Entre Ríos (UNER) has been awarded the project to use GNU Health as a real-time observatory for the COVID-19 pandemic, by the Government of Argentina. In the context of the GNU Health Alliance, UNER has also developed the oral health package for GNU Health; and implemented the GNU Health Hospital Management Information System component in many public health care institutions in the country. The team from the UNER has traveled to Cameroon to implement GNU Health HMIS in several health facilities in the country, as well as training their health professionals.
  • Thymbra Healthcare (R&D Labs) has contributed the medical genetics and precision medicine. Currently, Thymbra is focused on MyGNUHealth, the GNU Health Personal Health Record (PHR) for KDE plasma mobile and desktops devices, and working on the integration of MyGNUHealth with the PinePhone.
  • Khadas has signed an agreement to work on with the GNU Health community in Artificial Intelligence and medical imaging, as well on integrating Single Board Computers (SBCs) with GNU Health (the GNU Health in a Box project)

The fact that an association of 3500+ medical students embrace GNU Health means that all these bright future doctors from Bangladesh will also bear the ethics and philosophy of Libre Software to their communities. Public Health can not be run by private corporations, nor by proprietary software.

IFMSA has 5 years ahead to make a wonderful revolution in the public health care system. Health institutions will be able to implement state-of-the-art health informatics. Medical students can learn GNU Health inside-out, and conduct workshops across the country in the Libre digital health ecosystem. Most importantly, I am positive GNU Health will provide a wonderful opportunity to improve the health promotion and disease prevention campaigns in Bangladesh.

As the president of GNU Solidario, I am truly honored and looking forward to start collaborating with our colleagues from Bangladesh, and, when the pandemic is over, be able to meet them in person.

My most sincere appreciation to IFMSA Bangladesh for becoming part of the GNU Health community. To the 3500+ members, a very warm welcome!

Let’s keep building communities that foster universal health care, freedom and social medicine around the world.

For further information about the GNU Health Alliance of Academic and Research Institutions, please contact us at:

GNU Health Alliance: alliance@gnuhealth.org

Press: press@gnuhealth.org

General Information : info@gnuhealth.org

Liberating our mobile computing

04 Friday Jun 2021

Posted by Luis Falcon in GNU Health

≈ Comments Off on Liberating our mobile computing

Tags

GNU Health, KDE, PinePhone

Last week I got the PineTime, a free/libre smartwatch. In the past months, I’ve been working on MyGNUHealth and porting it to the PinePhone.

Why doing so? Because running free/libre operating systems and having control of the applications on your mobile phones and wearables is the right thing to do.

Yesterday, I told myself: “This is the day to move away from Android and take control over my phone”. And I made the switch. Now I am using a PinePhone on Manjaro running KDE plasma mobile. I have also switched my smartwatch to the PineTime.

The mobile phone and smartwatch were the last pieces of hardware and software to liberate. All my computing is now libre. No proprietary operating systems, no closed-source applications. Not on my laptop, not in my desktop, not on my phone.

Facing and overcoming the social pressure

At the moment I ditched Android, I felt an immense sense of relief and happiness. It took me back 30 years ago, early FreeBSD and GNU/Linux times, being in control of every component of my computer.

We can not put our daily life activities, electronic transactions and data in the hands of the corporations. Android phones shipped today are full of “bloatware” and closed-source applications. We can safely call most of those applications spyware.

The PinePhone is a libre computer, with a phone. All the applications are Libre Software. I have SSH, most of the cool KDE plasma applications I enjoy in the desktop, I can have them now in my pocket. Again, most importantly, I am free.

Of course, freedom comes with a price. The price to face social and corporate pressure. For instance, somebody asked me yesterday how to deal with banking without the app. My answer was, I never used an app for banking. Running a proprietary financial application is shooting at the heart of your privacy. If your bank does not let you do your transactions from any standard web browser, then change your bank. Quick digression… the financial system and the big technological corporations are desperately trying to get rid of good all coins and bills. This is yet another attack on our privacy. Nobody needs to know when, where and what I buy.

A brighter future depends on us

Some people might argue that this technology might not be ready for prime time, yet. I would say that I am ok with it, and the more we join, the more feedback we provide, and the better end result we’ll get.

The Pine64 project is mainly a community-oriented ecosystem. Its hardware, operating system and applications are from the community and for the community. I am developing MyGNUHealth Personal Health Record to be run on KDE Plasma, both for desktop and for the PinePhone and other Libre mobile devices. It is my commitment with freedom, privacy and universal healthcare to deliver health informatics in Libre, privacy focused platforms that anyone can adopt.

MyGNUHealth Personal Health Record running on the Desktop and on the PinePhone. The PineTime smartwatch as the next companion for MyGNUHealth. All these components are privacy focused, Free/Libre Software and hardware.

It depends on you to be prisoner of the corporation and massive surveillance systems, or to be in full control of your programming, health information and life. It takes commitment to achieve it… some components might be too bleeding edge or the camera might not have the highest resolutions and you won’t have the Whatsapp “app” (removing that application would actually be a blessing). It’s a very small price to pay for freedom and privacy. It’s a very small price to pay for the advancement of our society.

InfiniTime firmware upgrade using Siglo.

It’s been many years since I’ve been in the look out for a truly libre phone. After many projects that succumbed, the PinePhone is the first one that has gained momentum. Please support the PinePhone project. Support KDE plasma mobile. Support Arch, Manjaro, openSUSE, FreeBSD or your favorite Libre operating system. Support those who make Libre convergent applications that can be run on mobile devices, like Kirigami. Support InfiniTime and any free/libre firmware for smartwatches, as well as their companions as Siglo or Amazfish.

The future of Libre mobile computing is now, more than ever, in your hands.

Happy and healthy hacking.

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