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Monthly Archives: June 2021

Welcome to MyGNUHealth, the Libre Personal Health Record

24 Thursday Jun 2021

Posted by Luis Falcon in GNU Health, KDE, MyGNUHealth

≈ Comments Off on Welcome to MyGNUHealth, the Libre Personal Health Record

Tags

gnu, GNU Health, KDE, mHealth, MyGNUHealth, PHR

MyGNUHealth 1.0 us out! The GNU Health Libre Personal Health Record is now ready for prime time!

This is great news. Great news because citizens around the world have now access to a Free/Libre application, focused on privacy, that puts them in control of their health.

Health is personal, so is the health data. It’s been years since I got the idea of expanding the GNU Health ecosystem, not only to the health professionals and institutions, but making it personal, accessible to individuals. Now is a reality!

Throughout these years, the mobile health (mHealth) has been governed by private companies that benefit from your health data. Private companies, private insurances, proprietary operating systems, proprietary health applications. Big business, no privacy.

MyGNUHealth running on KDE Plasma desktop and Arch Linux

GNU and Libre Software

The GNU Health ecosystem exists because of Free software. Thanks to communities such as GNU, we can have fully operational operating systems, desktop environments, databases and programming languages that allow us to use and write free software. GNU Health is one example.

The Libre Software movement fights for the advancement of our societies, by providing universality in computing. In the case of GNU Health, that freedom and equity in computing is applied into the healthcare and social medicine domains. Health is a non-negotiable human right, so it must be health informatics.

What is MyGNUHealth?

MyGNUHealth (MyGH)is a Health Personal Record application focused in privacy, that can be used in desktops and mobile devices.

MyGH embraces the main health domains (bio-psycho-social). All the components in the GNU Health ecosystem combine social medicine and primary care with the latest on bioinformatics and precision medicine. The complex interactions between these health domains play a key role in the state of health and disease of an individual, family and society.

MyGH has the functionality of a health and activity tracker, and that of a health diary / record. It records and tracks the main anthropometric and physiological measures, such as weight, blood pressure, blood sugar level or oxygen saturation. It keeps track of your lifestyle, nutrition, physical activity, and sleep, with numerous charts to visualize the trends.

MyGNUHealth is also a diary, that records all relevant information from the medical and social domain and their context. In the medical domain, you can record your encounters, immunizations, hospitalizations, lab tests,genetic and family history, among others. In the genetic context, MyGH provides a dataset of over 30000 natural variants / SNP from UniProt that are relevant in human. Entering the RefSNP will automatically provide the information about that particular variant and it clinical significance.

The Social domain, contains the key social determinants of health (Social Gradient, Early life development, Stress, Social exclusion, Working conditions, Education, Physical environment, Unemployment, Social Support, Addiction, Food, Transportation, Health services, Family functionality, Family violence, Bullying, War) , most of them from the World Health Organization social determinants of health.

A very important feature of MyGH is that it is GNU Health Federation. That is, if you want to share any of this data with your health professional in real-time, and they will be able to study it.

Lifestyle and activity tracker
Social domain and its contexts, along the book of life
Mood and energy assessment
Medical genetics showing the relevant information on a particular natural variant / SNP

The PinePhone and the revolution in mobile computing

Of course, in a world of mobile phones and mobile computing, we need free/libre mobile applications. The problem I was facing until recently, that prevented me from writing MyGNUHealth, was the fact that there was no libre mobile environment. The mobile computing market has been dominated by Google and Apple, which both deliver proprietary operating systems, Android and iOS respectively.

The irruption of the Pine64 community was the eye-opener and a game changer. A thriving community of talented people, determined to provide freedom in mobile computing. The Pine64 provides, among others, a smartphone (PinePhone), and a smartwatch (PineTime), and I have adopted both.

Starting up MyGNUHealth application in the PinePhone
KDE Plasma mobile applications on the PinePhone

I wrote an article some weeks ago (“Liberating our mobile computing”), where I mentioned why I have changed the Android phone to the PinePhone, and my watch to the PineTime.

Does the PinePhone have the best camera? Can we compare the PinePhone with Apple or Google products? It’s hard to compare a multi-billion dollar corporation with a fresh, community-oriented project. The business model, the technology components and the ethics behind are very different.

So, why making the move? I made the change because we, as a society, need to embrace a technology that is universal and that respects our freedom and privacy. A technology that focuses on the individual and not in the corporation. That moves takes determination and commitment. There is a small price to pay, but freedom and privacy are priceless.

Taking MyGNUHealth and the PinePhone to the outdoors.

As a physician, I need to provide my patients the resources that use state-of-the-art technology, and, at the same time, guarantee the privacy of their sensitive medical information. Libre software and open standards are key in healthcare. When my patients choose free/libre software, they have full control. They also have the possibility to share it with me or with other health professionals, in real-time and with the highest levels of privacy.

We can only manage sensitive health data with technology that respects our privacy. In other words, we can not put our personal information in the hands of corporate interests. Choosing Libre Software and Hardware means much more than just technology. Libre Software means embracing solidarity and cooperation. It means sharing knowledge, code and time with others. It means embracing open science for the advancement of our societies, specially for those that need it most.

MyGNUHealth will be included by default in many operating systems and distributions, so you don’t have to worry about the technical details. Just use your health companion! If your operating system does not have MyGH in their repositories, please ask them to include it.

Governments, institutions, and health professional need affordable technology that respects their citizens freedom. We need you to be part of this eHealth revolution.

Happy and healthy hacking!

About GNUHealth:

MyGNUHealth is part of the GNU Health, the Libre digital health ecosystem. GNU Health is from GNU Solidario, a humanitarian, non-for-profit organization focused on the advancement of Social Medicine. GNU Solidario develops health applications and uses exclusively Free/Libre software. GNU Health is an official GNU project.

Homepage : https://www.gnuhealth.org

Documentation portal : https://www.gnuhealth.org/docs

IFMSA Bangladesh joins the GNU Health Alliance

07 Monday Jun 2021

Posted by Luis Falcon in GNU Health, GNU solidario, Libre Software, MyGNUHealth, Public Health

≈ Comments Off on IFMSA Bangladesh joins the GNU Health Alliance

Tags

free software, GNU solidario, Public Health

The non-profit organization with 3500+ medical students and 65 universities across the country is now part of the GNU Health Alliance of Academic and Research Institutions
The non-profit organization with 3500+ medical students and 65 universities across the country is now part of the GNU Health Alliance of Academic and Research Institutions

It’s a great day for Bangladesh. It’s a great day for public health! Today, GNU Solidario and the International Federation of Medical Students Association, IFMSA Bangladesh, have signed an initial 5-year partnership on the grounds of the GNU Health Alliance of Academic and Research Institutions.

IFMSA Bangladesh is a non-for-profit, non-political organization that comprises 3500+ medical students from over 65 schools of Medicine across Bangladesh. They are a solid organization, very well organized, with different standing committees and support divisions.

IFMSA vision and mission fits very well with those of GNU Solidario advancement of Social Medicine. IFMSA has projects on Public Health (reproductive health; personal hygiene; cardiovascular disease and cancer prevention, … ), Human rights and peace (campaigns to end violence against women; protection of the underprivileged elders and children.. ). I am positive the GNU Health ecosystem will help them reach their goals in each of their projects!

The GNU Health Alliance of Academic and Research Institutions is extremely happy to have IFMSA Bangladesh as a member. IFMSA Bangladesh joins now a group of outstanding researchers and institutions that have made phenomenal advancements in health informatics and contributions to public health. Some examples:

  • The National University of Entre Ríos (UNER) has been awarded the project to use GNU Health as a real-time observatory for the COVID-19 pandemic, by the Government of Argentina. In the context of the GNU Health Alliance, UNER has also developed the oral health package for GNU Health; and implemented the GNU Health Hospital Management Information System component in many public health care institutions in the country. The team from the UNER has traveled to Cameroon to implement GNU Health HMIS in several health facilities in the country, as well as training their health professionals.
  • Thymbra Healthcare (R&D Labs) has contributed the medical genetics and precision medicine. Currently, Thymbra is focused on MyGNUHealth, the GNU Health Personal Health Record (PHR) for KDE plasma mobile and desktops devices, and working on the integration of MyGNUHealth with the PinePhone.
  • Khadas has signed an agreement to work on with the GNU Health community in Artificial Intelligence and medical imaging, as well on integrating Single Board Computers (SBCs) with GNU Health (the GNU Health in a Box project)

The fact that an association of 3500+ medical students embrace GNU Health means that all these bright future doctors from Bangladesh will also bear the ethics and philosophy of Libre Software to their communities. Public Health can not be run by private corporations, nor by proprietary software.

IFMSA has 5 years ahead to make a wonderful revolution in the public health care system. Health institutions will be able to implement state-of-the-art health informatics. Medical students can learn GNU Health inside-out, and conduct workshops across the country in the Libre digital health ecosystem. Most importantly, I am positive GNU Health will provide a wonderful opportunity to improve the health promotion and disease prevention campaigns in Bangladesh.

As the president of GNU Solidario, I am truly honored and looking forward to start collaborating with our colleagues from Bangladesh, and, when the pandemic is over, be able to meet them in person.

My most sincere appreciation to IFMSA Bangladesh for becoming part of the GNU Health community. To the 3500+ members, a very warm welcome!

Let’s keep building communities that foster universal health care, freedom and social medicine around the world.

For further information about the GNU Health Alliance of Academic and Research Institutions, please contact us at:

GNU Health Alliance: alliance@gnuhealth.org

Press: press@gnuhealth.org

General Information : info@gnuhealth.org

Liberating our mobile computing

04 Friday Jun 2021

Posted by Luis Falcon in GNU Health

≈ Comments Off on Liberating our mobile computing

Tags

GNU Health, KDE, PinePhone

Last week I got the PineTime, a free/libre smartwatch. In the past months, I’ve been working on MyGNUHealth and porting it to the PinePhone.

Why doing so? Because running free/libre operating systems and having control of the applications on your mobile phones and wearables is the right thing to do.

Yesterday, I told myself: “This is the day to move away from Android and take control over my phone”. And I made the switch. Now I am using a PinePhone on Manjaro running KDE plasma mobile. I have also switched my smartwatch to the PineTime.

The mobile phone and smartwatch were the last pieces of hardware and software to liberate. All my computing is now libre. No proprietary operating systems, no closed-source applications. Not on my laptop, not in my desktop, not on my phone.

Facing and overcoming the social pressure

At the moment I ditched Android, I felt an immense sense of relief and happiness. It took me back 30 years ago, early FreeBSD and GNU/Linux times, being in control of every component of my computer.

We can not put our daily life activities, electronic transactions and data in the hands of the corporations. Android phones shipped today are full of “bloatware” and closed-source applications. We can safely call most of those applications spyware.

The PinePhone is a libre computer, with a phone. All the applications are Libre Software. I have SSH, most of the cool KDE plasma applications I enjoy in the desktop, I can have them now in my pocket. Again, most importantly, I am free.

Of course, freedom comes with a price. The price to face social and corporate pressure. For instance, somebody asked me yesterday how to deal with banking without the app. My answer was, I never used an app for banking. Running a proprietary financial application is shooting at the heart of your privacy. If your bank does not let you do your transactions from any standard web browser, then change your bank. Quick digression… the financial system and the big technological corporations are desperately trying to get rid of good all coins and bills. This is yet another attack on our privacy. Nobody needs to know when, where and what I buy.

A brighter future depends on us

Some people might argue that this technology might not be ready for prime time, yet. I would say that I am ok with it, and the more we join, the more feedback we provide, and the better end result we’ll get.

The Pine64 project is mainly a community-oriented ecosystem. Its hardware, operating system and applications are from the community and for the community. I am developing MyGNUHealth Personal Health Record to be run on KDE Plasma, both for desktop and for the PinePhone and other Libre mobile devices. It is my commitment with freedom, privacy and universal healthcare to deliver health informatics in Libre, privacy focused platforms that anyone can adopt.

MyGNUHealth Personal Health Record running on the Desktop and on the PinePhone. The PineTime smartwatch as the next companion for MyGNUHealth. All these components are privacy focused, Free/Libre Software and hardware.

It depends on you to be prisoner of the corporation and massive surveillance systems, or to be in full control of your programming, health information and life. It takes commitment to achieve it… some components might be too bleeding edge or the camera might not have the highest resolutions and you won’t have the Whatsapp “app” (removing that application would actually be a blessing). It’s a very small price to pay for freedom and privacy. It’s a very small price to pay for the advancement of our society.

InfiniTime firmware upgrade using Siglo.

It’s been many years since I’ve been in the look out for a truly libre phone. After many projects that succumbed, the PinePhone is the first one that has gained momentum. Please support the PinePhone project. Support KDE plasma mobile. Support Arch, Manjaro, openSUSE, FreeBSD or your favorite Libre operating system. Support those who make Libre convergent applications that can be run on mobile devices, like Kirigami. Support InfiniTime and any free/libre firmware for smartwatches, as well as their companions as Siglo or Amazfish.

The future of Libre mobile computing is now, more than ever, in your hands.

Happy and healthy hacking.

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  • Happy birthday, GNU Health!

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