MyGNUHealth 1.0 us out! The GNU Health Libre Personal Health Record is now ready for prime time!
This is great news. Great news because citizens around the world have now access to a Free/Libre application, focused on privacy, that puts them in control of their health.
Health is personal, so is the health data. It’s been years since I got the idea of expanding the GNU Health ecosystem, not only to the health professionals and institutions, but making it personal, accessible to individuals. Now is a reality!
Throughout these years, the mobile health (mHealth) has been governed by private companies that benefit from your health data. Private companies, private insurances, proprietary operating systems, proprietary health applications. Big business, no privacy.
GNU and Libre Software
The GNU Health ecosystem exists because of Free software. Thanks to communities such as GNU, we can have fully operational operating systems, desktop environments, databases and programming languages that allow us to use and write free software. GNU Health is one example.
The Libre Software movement fights for the advancement of our societies, by providing universality in computing. In the case of GNU Health, that freedom and equity in computing is applied into the healthcare and social medicine domains. Health is a non-negotiable human right, so it must be health informatics.
What is MyGNUHealth?
MyGNUHealth (MyGH)is a Health Personal Record application focused in privacy, that can be used in desktops and mobile devices.
MyGH embraces the main health domains (bio-psycho-social). All the components in the GNU Health ecosystem combine social medicine and primary care with the latest on bioinformatics and precision medicine. The complex interactions between these health domains play a key role in the state of health and disease of an individual, family and society.
MyGH has the functionality of a health and activity tracker, and that of a health diary / record. It records and tracks the main anthropometric and physiological measures, such as weight, blood pressure, blood sugar level or oxygen saturation. It keeps track of your lifestyle, nutrition, physical activity, and sleep, with numerous charts to visualize the trends.
MyGNUHealth is also a diary, that records all relevant information from the medical and social domain and their context. In the medical domain, you can record your encounters, immunizations, hospitalizations, lab tests,genetic and family history, among others. In the genetic context, MyGH provides a dataset of over 30000 natural variants / SNP from UniProt that are relevant in human. Entering the RefSNP will automatically provide the information about that particular variant and it clinical significance.
The Social domain, contains the key social determinants of health (Social Gradient, Early life development, Stress, Social exclusion, Working conditions, Education, Physical environment, Unemployment, Social Support, Addiction, Food, Transportation, Health services, Family functionality, Family violence, Bullying, War) , most of them from the World Health Organization social determinants of health.
A very important feature of MyGH is that it is GNU Health Federation. That is, if you want to share any of this data with your health professional in real-time, and they will be able to study it.
The PinePhone and the revolution in mobile computing
Of course, in a world of mobile phones and mobile computing, we need free/libre mobile applications. The problem I was facing until recently, that prevented me from writing MyGNUHealth, was the fact that there was no libre mobile environment. The mobile computing market has been dominated by Google and Apple, which both deliver proprietary operating systems, Android and iOS respectively.
The irruption of the Pine64 community was the eye-opener and a game changer. A thriving community of talented people, determined to provide freedom in mobile computing. The Pine64 provides, among others, a smartphone (PinePhone), and a smartwatch (PineTime), and I have adopted both.
I wrote an article some weeks ago (“Liberating our mobile computing”), where I mentioned why I have changed the Android phone to the PinePhone, and my watch to the PineTime.
Does the PinePhone have the best camera? Can we compare the PinePhone with Apple or Google products? It’s hard to compare a multi-billion dollar corporation with a fresh, community-oriented project. The business model, the technology components and the ethics behind are very different.
So, why making the move? I made the change because we, as a society, need to embrace a technology that is universal and that respects our freedom and privacy. A technology that focuses on the individual and not in the corporation. That moves takes determination and commitment. There is a small price to pay, but freedom and privacy are priceless.
As a physician, I need to provide my patients the resources that use state-of-the-art technology, and, at the same time, guarantee the privacy of their sensitive medical information. Libre software and open standards are key in healthcare. When my patients choose free/libre software, they have full control. They also have the possibility to share it with me or with other health professionals, in real-time and with the highest levels of privacy.
We can only manage sensitive health data with technology that respects our privacy. In other words, we can not put our personal information in the hands of corporate interests. Choosing Libre Software and Hardware means much more than just technology. Libre Software means embracing solidarity and cooperation. It means sharing knowledge, code and time with others. It means embracing open science for the advancement of our societies, specially for those that need it most.
MyGNUHealth will be included by default in many operating systems and distributions, so you don’t have to worry about the technical details. Just use your health companion! If your operating system does not have MyGH in their repositories, please ask them to include it.
Governments, institutions, and health professional need affordable technology that respects their citizens freedom. We need you to be part of this eHealth revolution.
Happy and healthy hacking!
MyGNUHealth is part of the GNU Health, the Libre digital health ecosystem. GNU Health is from GNU Solidario, a humanitarian, non-for-profit organization focused on the advancement of Social Medicine. GNU Solidario develops health applications and uses exclusively Free/Libre software. GNU Health is an official GNU project.
Homepage : https://www.gnuhealth.org
Documentation portal : https://www.gnuhealth.org/docs